What is Peyronie's disease?
Peyronie’s (pronounced “Pay-ROH-neez”) disease is the development of scar tissue, also known as a Peyronie’s plaque, under the skin of the penis that causes a curved erection.
You may notice that the plaque that may be causing your curved erection feels firm, like a lump or bump. Or you may not even realize you have a plaque.
While the exact cause of Peyronie’s disease is not known, the plaque is thought to result from:
- An injury or repeated trauma to the penis, which may occur during sexual activity
- Genetic factors
Peyronie's disease is unlikely to go away on its own and may get worse over time. So if you have any of these penile symptoms, it's important to speak to a urologist to ask if you could have Peyronie's disease and find out about treatment options:
- A curved erection, with or without pain
- A lump or bump on your penis
Peyronie’s disease is more common than you might think
You're not alone. Thousands of men in the US may also have Peyronie's disease.
Because many men are too embarrassed to seek help for penile symptoms associated with Peyronie's disease, they often go undiagnosed.
*Based on a survey of more than 11,000 adult men with diagnosed Peyronie's disease in the US, a history of seeking care for the disease, or having related symptoms.
Peyronie's disease is different than erectile dysfunction
Some men who have Peyronie's disease may think that it's erectile dysfunction. Some big differences to look for are a lump or bump and a curve in your erection. If you have these symptoms, you could actually have Peyronie's disease.
While it is possible to have both erectile dysfunction and Peyronie's disease, these conditions each require their own separate diagnosis and treatment. Be sure to tell your healthcare professional (HCP) about all of your symptoms so they can help you figure out what's really going on.
What patients are saying
See what real guys with Peyronie's disease have to say about it
"If you have Peyronie's disease, you're not alone. You don't have to be alone in this. You should talk to your urologist, you should find out what your options are, and take charge of it."
"You should do your research, discuss the options with your partner, make an appointment and go visit your urologist, ask about the various treatment options, and decide what's best for you."
"Find a urologist that you're comfortable with and who's experienced. And if they do diagnose you, take the time to understand your options. And go ahead. It's worth your patience."
"It's so personal...it's something physically wrong with you. I constantly felt like I had this diseased secret that I could not tell anybody."
"The first thing I noticed was the visible change. It was the curvature and that was where I was kind of in denial."
"You've got to learn what Peyronie's disease is, what the treatments are, who's the best to treat it. Education, education."
Learn more about their experiences with Peyronie's disease
What to ask your HCP
Ask a urologist about your erectile curvature. It could be Peyronie's disease.
Whether or not you see a primary care provider first, you may need to talk to a urologist about your penile symptoms. Urologists specialize in the treatment of male urological conditions, including Peyronie's disease.
You may feel uncomfortable discussing erectile curvature with a urologist. Rest assured that urologists are used to talking about these kinds of things and are familiar with this condition, which could be Peyronie's disease.
Here are a few questions to get the conversation started:
- Is my erectile curvature Peyronie's disease?
- Is my curve 30 degrees or more?
- Do I have a lump or bump (a plaque) that can be felt?
Be sure to also talk about if your symptoms bother you.
If you're diagnosed with Peyronie's disease, understand your options
If your urologist says you have Peyronie's disease with a curvature of 30 degrees or more and a plaque that can be felt, ask:
- Is XIAFLEX® right for me?
- What is involved in treatment with XIAFLEX®?
- Are you trained to administer XIAFLEX®? If not, can you refer me to someone who is?
- Are there other FDA-approved treatments for Peyronie's disease?
- What are the possible side effects with each treatment option?